My Heart's Desire

For as long as I can remember, Jake & I have wanted child.  Actually ideally we would have loved to have had more than one child. However if I've learned one thing in life, it's that life never works out the way you expect.

I would like to say that we have been open about our struggles with fertility, but we haven't.  In fact, for many years our struggles were kept only between us.  As the years went on, we shared our journey with only a selected few.

The truth is, along the way, not everyone has been supportive.  Sad to say, there are a lot of people who think that I don't have the right to be a mom simply bc I have Cerebral Palsy or am in a wheelchair.  And this includes some people who were in my life & even some doctors.

You just would not believe what some people say - right to my face - when they are confronted with the truth I try to live in daily.

Truth is, CP is not genetic.  And just bc someone is in a wheelchair, it does not mean they cannot be a good mother.  It most certainly does not mean I don't deserve a chance to be a mom, if that's what my heart desires.

Then there is Jake who deserves to be a dad just as much as I deserve to be a mom.  You should see him interact with the children he works with.  He's amazing.  I can honestly say that one of the privileges of volunteering where he works is getting to see this firsthand.  He has truly found his sweet spot & the place where his heart lives.

And this is the journey we have found ourselves on... we certainly expected that we would have some challenges to deal with along the way & some things to figure out. To be honest, along the way, many things, which includes our many emotions, have not been easy at all.

And years later, we are still here. Waiting & praying. Knowing that one day things will fall into just the way they are meant to be, whether we are parents or not.

One Step At A Time

"Faith is taking the first step 

even when you don't see the whole staircase."

~ Martin Luther King, Jr.

(1929-1968)

I'm 37 today. Thirty seven.

How did I get here?  How have Jake & I just had the privilege of celebrating our 8th year of marriage already?  It's a privilege that we fought for - a privilege that we have very much earned the right to celebrate.  After all, a lot of marriages don't even make it this far, sad to say.

Truthfully, I must say with each passing year, the twinge in my heart gets a little deeper.

And there is a sadness, hidden behind the celebration of blessings.  Amid the thankfulness of another year, there is something missing.  No, not something, but someone.

For another year of trying to have a child has passed.

Yet we pray, we hope, we believe - that we will be parents some day.

Sometimes, I think the hardest part of faith is believing what we cannot see.  No, not God - for I see Him daily in numerous ways, but rather His Plan for my life.

It is hard for me to see His Plan, bc I am limited by my very human eyes.  And try as I might, I just can't see the whole picture - the Greater Plan.

And no, I may not know why certain things happen or don't happen.  I may never know this side of Heaven;  however, at times, I do see glimpses His Plan.

So with each year that passes, I cling to my faith.  And I forge on, one step at a time, even if I don't see the whole staircase.

Dad: Two Years Gone

{Dad at Winter's Run, 7.26.2005}
24 months.  104 weeks.  730 days. 17,520 hours.  1,051,200 minutes.  63,072,000 seconds.

How do you measure 2 years two years gone by, without someone you love?

By sleepless nights, tears shed, questions asked, prayers prayed, memories remembered?

Or maybe it's by telephone calls not received, conversations missed, errands not run, pool games not played, crabs not shared, hugs not given, I love yous not uttered.

Whatever way you measure it, I'm missing the first man who ever loved me.  And amid the myriad of emotions that overcome me, I'm jealous of the angels today.

"Jealous of the Angels"

By: Jenn Bostic

I miss you, Daddy. Thank you for loving me. I'm holding you as close as I can, longing for the day when we meet again.  Until then, as always, your love continues to live through me.

Love Always - Your Little Girl,

Strung Together

It's well past 4 AM & I haven't slept. I hate nights like this. I am beyond exhausted.  I've had a few nights like these strung together back to back & let me say they are not fun.

I've just have had to much on my mind & for whatever reason, it is hard for me to rest.  In fact, just earlier this week I wrote this, the beginning of an unfinished, unpublished post:

"I will both lie down in peace, and sleep; for You alone, O Lord, make me dwell in safety."

~ Psalm 4:8

I hate the nights the most.

Last night, I couldn't sleep - finally giving into exhaustion around 5:30 AM this morning. I was so thankful for sleep. Unable to shut my thoughts off, I was praying for rest. Soulful rest. So very thankful for answered prayers.

Since the new year, I've been having good days, & again, I am thankful for them. Still my soul needs rest. When I look back at this season of life I'm in, I am thankful to be where I am today. I have a husband who loves me, a mom who loves & supports me, a father-in-law who does the same. And really great friends.'

All of this is very true - still now days later. The only difference is I have not slept tonight at all & I'm doubtful if sleep is to come. As I write this it is past 5 AM now...  Really it is hard to put in to words what's bothering me.  It is many things.

I am very grateful for all blessings I have & they are many. I am grateful for movement in my grief, & the good days that I have, whether they are few & far between or (thankfully) strung together much like these sleepless nights have been.

I still pray for rest, & somewhere deep inside, I know it's coming.  I just don't know when.  It very much mirrors how I have been feeling & what I have been thinking about faith & God...  God is good & He makes beautiful things.  He wants to give me my deepest desires - for He knows my heart, without me uttering one word.

He has great plans for me.  Greater plans than what I think my life should be.  He is patient & is with me in these difficult sleepless nights, amoung the the tears & frustration.  Secretly, I wonder if I saw the bigger picture - the whole picture of my life - would it change how I feel about things or my thoughts?  I truly cannot answer that.

I can say this though: all my trials, tribulations, lessons & blessings have made me who I am today & if it were all different - all strung together differently - I wouldn't be living the life God has planned for me. 

So yes, I'm praying for rest - soulful rest.  Praying for understanding, peace & clarity.  Just knowing, trusting that my life  is woven together with His story & it is more beautiful than I could ever imagine.

Dear Deanna: Loving Me Still

Me & Deanna, Camp Greentop, 2000

My Dearest Dee,

As always thank you for your warm thoughts & needed prayers.  I'm doing alright.  Some days are better than others, but even through this, I can still see how truly blessed I am.

Our Christmas was emotional but very blessed. More emotional on my part than Jake's, but he has his own process too. We were lucky to have these amazing friends to spend Christmas Eve with which made the holiday easier in so many ways.

We also spent Christmas with Mom & our cousin Bobby & it was so nice to get to spend such a great evening with them.  We may not have much family to spend time with, but we are grateful for that time we spend with them, blood or not.

And honestly, that is how a holiday should be spent, surrounded with friends & family that love us.

I can feel movement in my grief, even since we spoke.  In so many ways, I am so very grateful for that.  I cannot deny that there is a freedom in speaking things outloud & something happens when a truth, especially one that needs to be said, is spoken.

Trust me, I am grateful for every word spoken, tear shed, & prayer uttered, bc I know that deep down it is where I am & it leads to healing. I'm so very thankful for friends like you, who I can be open & honest with, who let me say what I need to say when I need to say it. The ones who let me be where I am, & love me regardless of circomstance. It is what a true friend is & that is what matters most.



Friends come and friends go,
but a true friend sticks by you like family.
~ Proverbs 18:24 (The Message)

I wish you were here, Dee. There is still so much I want to say. Yet, there are still somethings I can't find the words...  I just keep thinking how incredably blessed I am, & how much my head is a mess.

I miss you. I miss your hugs.  And I miss how you always knew what to say or what I needed.  I know you can't fix this. No one can. And that's okay. You just always made me feel better.  Thank you so much for being there for me.  Reaching back when I reach out. Loving me without condition.  Loving me... still.

Love & Light Always,

Hope Is The Thing With Feathers

"Hope” is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all,

And sweetest in the Gale is heard;
And sore must be the storm
That could abash the little bird
That kept so many warm.

I've heard it in the chilliest land
And on the strangest Sea;
Yet, never, in extremity,
It asked a crumb of me.

~ Emily Dickinson (1830 - 1886)
In this season of life that I find myself in, I am learning a lot about hope.  What it feels like to live without it, & what it feels like to have it.

Sometimes, even in the darkest of times, I thank God that I have hope that things will get better, even if that hope is very small at times.  Sometimes, in the moments when it is small, I like to think it is like a smoldering fire - still there, not completely gone.

Waiting.  Waiting for oxygen. Waiting to come alive again.

I miss when life used to be simple.  When best friends & parents didn't die. When friends were still in your life, regardless of the circumstances. When starting a family seemed not only obtainable, but realistic.

I do not know how I got out of  blogging, something I have always loved.  Or why I shied away from sharing my heart openly, something I so desperately want to do.  All I know is my life is different now.

And everything fell apart. And I lost me. I stopped everything I enjoyed so that I could survive. Clinging to my faith & clinging to hope where I found it.



I do not know what's in the future for me.  All I know is what I have been through & where I have been.  And right now, I hold out for hope. And I pray that it remains alive & perched within my soul.

Catching Up

I can't believe it has been so long since I've have blogged! It has been forever... or at least it feels like forever. It's hard to believe that my computer has been broken for so long. Now, thanks to my mom & an early Christmas present, I'm connected again. Hopefully, I will be blogging more regularly now, if not for any one's sake but my own.

I feel like in the time that has passed a lot has changed.  I also feel that, in a lot of ways, things are the same.  I supposed that is bc both are true in their own way.

Though he is still without a job, Jake & I are well.  Although it is frustrating at times, we are lucky that we have a good support system, from family & friends that have been really supportive in various ways. I remain amazed at how God provides what we need when we need it, even if it's just an encouraging word when we needed the most.

I am forever thankful for the people in our lives & I am forever thankful for what God is doing in our lives.  I may not like everything that happens to us, but I no there is a reason for it all.

I am very hopeful that, although it is not without its challenges, we are where we are meant to be. And at least we are there together.

Update: Daisy

Daisy is well. She made it through the surgery with flying colors. The vet said she is just doing absolutely beautiful. We have to return in a couple of days to get her bandage off then she remains on restriction for two weeks  more until the staples come out.

I was ecstatic to hear that she did so well; now, I'm just praying that she heals nicely & that the infection that remains leaves quickly, now that the source of the infection is gone.  The most difficult part of this all, is watching her be kenneled all the time & not able to have her understand that it for her well being.  She just doesn't understand this all & I think that she thinks she is being punished.

We are managing her pain & she does not seem to be in a lot, but we've been really good about being constant with it, so that she is a comfortable as possible.  She has more anxiety than anything, but she seems to remain calm the most when Pop is around her.

I'm so glad that after she is healed, she won't be in pain anymore & can be happy & healthy again.  I wonder if she knows how much we love her & what a big part of our family she is & always has been. 

Daisy In Prayer

Daisy, my FIL's 13 year old dachshund, is in surgery just about now. A risky surgery, but a very much a needed one. I'll spare you the details, only that it has to do with removal of numerous tumors & a badly infected uterus with a very long & over do spay.

Everything about this sucks. The risk suck. I'm scared. She is such a sweet dog, who is very loved. We all love her.

Daisy was Jake's mom's dog. Well loved & well taken care of by her. Ms. Barbara died in April 2000 & completely changed this whole family, even Daisy - who very much was grieving too. She stopped eating & became super protective of her family very much. So much in fact that in the summer of 2003 when I started dating Jake, Daisy still only ate dog snacks - no food, just snacks

There is no doubt that Pop loves her. I also think Pop likes to avoid certain things & is in denial about other things. Other things like Daisy's health. He loves her, no doubt, but I think if he doesn't take her to the vet, the vet can't tell him bad news. News that he just doesn't want to hear.

So here we are - hoping & praying for the best in a difficult surgery that is complicated by Daisy's age. God, I love her so. She is such a great part of this family & Pee Wee loves her.

I must admit, that part of me has had to distance myself, not from daisy but from the situation, out of pure frustration at times. She is not our dog, but his. And he has made that clear. I wish I had the money to completely care for her, but I don't & that brakes my heart.

I love our vets (it's a family practice), & have much confidence in their abilities. I have faith & have said lots of prayers. And as for the rest, well, the rest, is not up to me.

It's Been Awhile

It's been months since I have written & I know it. The truth is within those months of absence, I have written hundreds of entries in my head. They just never made it here.

Sometimes, I wish they did.

Life has been tough. A lot of stuff going on... mostly emotional stuff that is taking it's toll on me. I won't bore you with details. Partly, bc it has just been so much & to try to write about it all at once is well, slightly overwhelming. And mostly bc I don't want this blog to be a downer for either you or me. Okay, so it might mostly be for my benefit. But still.

I never wanted this blog to be all about losing Mandy or losing Dad, but it seems that in large part that what it had become. Especially, Dad. This last year has been so difficult. It's like I lost not only him, but myself too. In a lot of ways, even now a year later, I'm trying to reclaim parts of me that don't seem to be connected.

As for Jake & I, we are doing well, despite the fact that he lost his job a few weeks ago. He was laid off along with many other people. I just hope & pray that his job search yields some results soon.

I miss a lot of my friends. Mostly, I just miss them being around. Or me being around them. Either way - schedules don't ever seem to line up & weeks go by & those weeks turn into months & so on. Life always seems to get in the way of the really important stuff. The stuff that doesn't cost money, but it cost time.

There never seems to be enough time. I hope, along with other things, that changes soon. Until then, I'm going to remember that in the darkest of times there still remains light.

Saying Sundays: On Prayer

"Prayer should be the breadth of our breathing, the thought of our thinking, the soul of our feeling, and the life of our living, the sound of our hearing, the growth of our growing. Prayer in its magnitude is length without end, width without bounds, height without top, and depth without bottom. Illimitable in its breadth, exhaustless in height, fathomless in depths and infinite in extension."

~Homer W. Hodge

Losing It

Losing what? I am not sure. I am not sure of much anymore.

For days I've stayed to myself... Painfully pulled away. Well, truth be told - It wasn't so much pulling away as me just stopping reaching out.

What is the point? Especially if others don't reach back or are insanely busy. I am starting to feel like a bother.

For days, I've been in a dark place - dark & difficult. I'm not depressed, I'm grieving. I know the difference, having been in both places many times, for different lengths of time.

Most don't get it. They still have their parents. Even Jake who lost his mom 10 years ago struggles to get it at times. He wants to fix this. He can't. I feel bad for him. Isn't that ironic?

I want to strangle the person who says time heals. Time doesn't heal a damn thing, it just continues on. Continues on despite everything.

I try to keep my faith - keep it close to me. I know God is carrying me bc I am exhausted & just can't do this anymore.

I have lost it. Lost myself. Feel like I have lost everything & including who I am. I will never be the same... I just am struggling. Struggling to find my new normal.

Thoughts that are dark dance in my head. I try not to entertain them, not for long... no good can come of it.

So for now, I will try to sleep. To get rest from it all. And I will pray that in the morning, light will shine through the darkness... at least for a little while.

Update : Dad

Hello everyone, it's Stacey. I am posting for Shannon today as she really can't be here right now. She did ask me to post an entry, especially for those who have been following, thinking and praying for her father. At 10:11am this morning, her Dad, Rodney passed away. He was 65 years old. He had been fighting a significant infection and awaiting surgery. I would like to ask you to please pray for Shannon, her family and her father in this very difficult time. The loss of a parent is tough to bear and she will need the strength and support of those of us who care about her.

Most faithful God, lively is the courage of those who hope in You. Your servant Rodney suffered greatly, but placed his trust in Your mercy. Confident that the petition of those who mourn pierces the clouds and finds an answer, we beg You, give rest to Rodney. Do not remember his sins, but look upon his sufferings and grant him refreshment, light, and peace. Amen.

Rodney Lea Brown (1945-2010)


"We are confident, I say, and would prefer to be away from the body and at home with the Lord."
2 Corinthians 5:8

In The Woods

Dear Friends,

Even though I am tired beyond belief, I wanted to take time & write you an update. Yesterday, Dad got transferred to JHH. This move was much faster than expected, but I learned that they want to operate on him tomorrow, if everything aligns in the universe right. If for some reason they can't do it tomorrow, Monday is a must.

Even though he is sicker than he has ever been, they want to remove his defibrillator unit as fast as possible to remove the original source of the infection. We are hoping that it is just the unit that is infected & not his heart, but seeing that the infection has spread to his bloodstream, they are doubtful.

Sometime during the night his defibrillator fired 9 times, so they quickly moved him to the CICU (Cardiac Intensive Care Unit) & put him on more meds to help his heart stay out of the pesky VT rhythms that is causing the defibrillator to go off.

The doctors have been very honest to both my dad & me, if he survives the surgery, the recovery will be long & difficult. It will be quite awhile before anybody can safely say his is out of the woods.

I'm holding up okay. Although I am exhausted & at times, frustrated & scared. For the majority of the time though - at least while I'm at the hospital - I am good, pulling strength from places even I didn't know existed.

I am so very thankful for your well wishes, prayers & encouragement through phone calls, e-mails. text, & even comments on my blog. They mean more than you will ever know.

Praying For Dad

Dear Friends,

I wanted to write you to touch base with you & let you know what is going on with my family. My dad, whose name is Rodney, is very sick. For weeks now, he has been fighting an infection at his pacemaker/defibrillator site that they have been trying to treat with antibiotics, in the hopes that they could prevent a very serious & dangerous surgery that may end his life or cause him to need emergency open heart surgery or, quite possibly both.

All attempts to prevent the surgery have failed & he was told today that the surgery is a must.

However, right now, he is too sick for them to attempt the operation. Yesterday, he was rushed to the hospital, after being weak & very sick for days. He has a massive staph infection throughout his body caused by the initial infection they have been trying to battle. His blood pressure is extremely low. His liver & kidneys are malfunctioning. In addition, his blood is super thin & they are trying to thicken it so that when he is more stable, they can transport him to JHH for the operation.

I would be very thankful if you would keep my dad & my family in your thoughts & prayers.

Only Moments

Only moments ago, I found out that Aunt Elaine, who has been battling cancer, has been rushed to the hospital. I don't know the details, only that it is serious.

I have been wanting to write about her, & about what she means to me - to put it mildly, she means the world, but I've been at a loss for words, just trying to sort through things myself.

Hopefully some day soon, I'll be able to share with you who she is, what she has meant to me, & the moments - & laughs, lots of them, that we share together.

For this moment though, I will pray. Won't you do the same?

Update: On Dad

Here's the long a waited update on Dad. He went to see several doctors. His regular heart Dr., who I'll call Dr. R, has a long history with my family. He was my Granddad's Dr. & has been my dad's Dr. for many years. It goes without saying that my family has a long history with him.

The second Dr. is the Heart Dr. at JHH who has operated on dad's heart for the past 2 years years. I will call him Dr. H.

First, Dad had to see Dr. H, for a follow up after he was finished all antibiotics he was given. His chest was still a little swollen & red, but the Dr., who is hoping not to operate on dad's heart bc he has see his heart up close & personal & knows how risky this operation will be for him, said he wants to see him in a couple of weeks.

A couple of days after this visit, Dad told me his chest was more swollen & red. When I tried to get him to call the doctor - any heart doctor, either Dr. R. or Dr. H., Dad refused & said in a couple of days he had a appointment with Dr. R..

When he went to that appointment, Dr. R. said he wants Dad to make an appointment with Dr. H. again. When I asked dad about it, he said he wanted to wait a while, a few weeks & see what happens. Much to my protest, believe me.

That was last week.

Within, 24 hrs. Dad has been hit with his defibrillator twice, the last time less than two hrs ago. I just don't know anymore. And I'm completely frustrated. Beyond belief.

I fear my dad has given up on life. I know he is tired. I know he thinks has a burden & a bother. He's not. He is my dad. And I love him.

Please pray.

Bring the Rain: Coming Through Storms

I am blessed. I truly am.

Exhausted as I've been, I have not forgotten this. Dad's doctors have decided at this point that surgery is just a little too risky & are putting things in place for him to go home on IV antibiotics for one week, oral for the next & then they will reassess.

Don't be fooled. I'm not blessed bc my dad's not having surgery. I'm not that superficial - never have been. And I don't believe God - at least the one I believe in - is superficial either.

I find it funny how some praise God when life is great & blame him when things are not so great. Believe it or not, I used to be one of these people. I don't blame Him for anything now. I am a firm believer that when you know better, you do better. Or in this case, when you know better, you believe differently.

One of my favorite songs, puts into words how I'm feel. Take a listen:

The thing is, I would be nothing with Him. He has brought me through some amazing, treacherous storms. Storms that others may not have survive. Yet, here I am not only surviving, but thriving.

So, onward I go... praising with His Grace & blessings along the way.

Eat, Pray, Love

The Beauty of Easter

Now that I've reached the point in time where my friend Mandy was hospitalized last year & passed away nearly a month later, I've just been taking it day by day. Some days are better than others.

I will not lie. I was not looking forward to this Easter. Not in the least. It is sad that I can not remember last Easter. I vaguely recall taking pictures of my brother-in-law's family in front of the magnolia tree in the front yard.

I don't even think we went to church. If we did I cannot remember. All that I can remember is thinking, "I hope this is not Mandy's last Easter. I hope I have more time with her. Please God, don't take away my best friend. Please don't take away another one." Weeks later she was gone. And a piece of my soul went with her.

Traditionally, mom & I have spent more Easters apart in the passing years than not. Mostly bc she has chosen to spend it with friends who don't have the greatest houses to get into with a power chair. Sometimes it really sucks to not be as mobile as I have been in the past.

As a result, the last couple of years we got to spend Easter with friends & their families. Creating moments & memories that I wouldn't trade for the world. They are priceless.

With Mandy being gone almost a year now, I've been feeling out of sorts, kind of lost. Not really sad as much as people would wrongly assume, but more just trying to work through my grief the best way I know how - by embracing it & taking one day at a time... like I said some days are better than others.

Easter rolled around this time & we really didn't have a place to go, which only mirrored how disconnected & displaced I have been feeling lately. When my friend, Beth, found out we didn't have plans, she invited us to to spend the day with her & her husband Will & their families.

{Me & Beth 3.7.2010}

I must tell about them. They are absolutely two of the most amazing people God allowed to cross my path or is it me who crossed their path? Either way...it is not hard to understand why they are who they are once you meet their families.

I still do not know what I have done to deserve such an friend that have found in Beth. Both her & Will are the most genuine, loving, passionate, real, down-to-earth, funny, creative, faith-rooted, God loving, hard working, caring & compassionate people you will ever have the privilege to meet... if you ever do.

{Will & Jake, 3.7.2010}

They have the most incredible property and beautiful house. All of which was made with love, hard work, blood, sweat & tears, since they bought their house in 2003 in "as is" condition intent on fixing up to sell it so that they can build their dream house on another lot within the 11 acre property. After awhile of putting so many hours in on the house, they decided to stay right there.

I assured Beth that even though her house was a split level & filled with many steps that somehow we would make it work, using the old phrase, "Where there is a will, there is a way."I came armed with a power chair, a manual chair, two ramps & even a set of quad canes. I assured her that everything would be fine & I was sure that God would would work everything out. And even though I had know idea how it was going to work, I knew it would.

Turns out, Easter day was beautiful. Absolutely breathtaking. After this incredibly moving, tear jerking open prayer to God, to which I did nothing but think of Mandy as big, humongous, tears ran down my cheeks spilling over & over again - much like they are now as I type this - we all ate outside. The food tasted great & Beth's thoughtfulness & creatively was all around us. Can't you tell by the Little Butter Lamb?

And as luck would have it - although I don't believe it was luck at all - my power chair just fit through her side door to her bottom level giving me access to it & a bathroom {:) Seriously. As the night wore on & the other company left, Beth & I chatted as we sat on the sofa as our men did dishes upstairs & chatted themselves. After Will went to bed, Jake came down stairs & eventually fell asleep, but Beth and I chatted on the sofa til 2 AM.

I must tell you - it has been quite a while, years even, since I felt so welcomed at someone's house. Throughout the day, I continually felt so unconditionally loved & supported, regardless of who I was, how I felt, or what I've been though.

Tears flow as I'm writing this... God is amazing. He makes sure we have what we need when we need it, just as He did when He made sure I was surrounded by the perfect people. I know, without a doubt, Mandy's in Heaven, no longer confined to a broken body with limitations. I miss her so much at times that I physically want to scream out in pain. But I know that bc she believed in Him, I will see her again. That is the beauty of sacrifice & Easter.