Fall Into Place

I often wonder just how I'm going to get through this holiday. Then, I realize it's only a couple more days away.

The trees is up, but not trimmed. Someone can't find the legs that he brought down from upstairs. So it sits with just the pre-strung lights on it. Not all the Christmas shopping is done... And I seriously doubt it will get done at this point. 

Although we have never really sent out Christmas cards before, I attempted today. Only able to get some of them out. The rest will be late.  That is just how it is, people will just have to understand.

We are just overwhelmed.  I am overwhelmed.

I keep thinking, praying even, that things will come together.  They are & they're not.  Times tickin' on, whether I want it to or not.  This is so more than just Jake still not finding a job, or me still not having health insurence...

I keep waiting... waiting for things to feel like Christmas.  Then I realize, the feeling that I'm waiting for, the feeling that I want, just isn't going to come.

I'm waiting for it to feel normal again.  And normal, as I knew it, just doesn't exist anymore.  I'm longing for something that isn't there -- not anymore.

I miss my dad.  I miss other people, & "other things."  Secretly, I wonder if  there will ever come a time where I'm able to openly speak about what those "other things" are.  I wonder about whether they will ever be written about on here.

If I'm to be truthful, I miss blogging my thoughts & feelings on here -- remember it has always been for my benefit, but to say that I guard my heart more & share it less is an understatement.

I have best friends that I've known for over 20 years that don't know my heart.  I keep waiting for the words to come, & it's annoying & frustrating when they don't, but experience tells me not to force the words or the timing.

So I wait. For things to fall into place.  Or fall apart. One or the other. Or both.

It's funny how I'm waiting for things to come together & fall apart at the same time.  That's my life I guess... what it has become.

I've been in the midst of one of the toughest seasons I've lived through. Somehow, I'm making it through. 

I have to say, that through it all -- I have gotten by with a little (sometimes A LOT) of help from my family & friends.  Even if they didn't even realize it.

It's all in that encouraging word, that warm hug, that gentle nudge in the right direction, the being there without being asked... 

And I know that one day the words will come -- to more people, as I process more, embrace fully.  As life & time ticks on.  I know there's a true freedom that exsits in saying what needs to be achknownleged -- spoken outloud, but I must trust myself & have faith. 

I have faith the words will come, I have faith that the right job for our family will happen, I have faith that my health insurence will be reinstated.

Yes, I will walk by faith -- even when I cannot see.  Bc I'm just a girl who dreams big, wishes for normal, prays a lot & knows that one day things will fall into place when they are meant to do so.

Fun

{Note: As painful as it may be for me to leave this post in it's true unedited form, that's how it's staying... To stay true to myself & the state of being, at the moment. Oh, and note to self: Maybe e-mails shouldn't be the only things to stay unwritten in sleepless states.}

It's 3 AM Thursday morning. We have to stop meeting like this. My husband leaves for work in 3 hours & the only thing that is beside him is the dog. That's what you get when you have an insomniac for a wife I suppose. And that's a damn shame.

I wonder if that ever bothers him? A while back when he worked for another company & on the night shift, it drove me crazy him not being here to sleep beside me. You think I have trouble sleeping now, you should have seen me then. I would go weeks without sleeping. You think I'm kidding.

Now, Jake - he's a different story. He can & would sleep standing up, if I let him. He has had no trouble what so ever falling asleep - as soon as he head hits the pillow. In fact, it took me longer to type that last part of that sentence than it takes him to sleep. I counted once. It wasn't even 3 seconds. Seriously.

My inability to sleep gets worse with worry & stress, something that I fully admit I have not had a handle on lately. I wish I could say I did. I feel like I'm rambling with long draw out sentences. I often repeat myself & talk in circles when I get like this. Oh, did I tell you that I got less than a hour last night too?

I'm trying to resist the urge to write a email to a friend of mine. I have a bad - I mean really bad - habit of writing e-mails when I'm exhausted &/or emotional. It's such a bad combination for me. Although I do try to live life with out regret, sometimes I regret doing things when I am in a state like this. It's as bad as if I were drunk. Can you just imagine?

So tired that if I actually tried to walk, assuming that I walked like I used to & wasn't stuck in this stupid chair, I would fall over. You know, I actually had some dumb guys say to me a few weeks ago how fun it must be to ride around in a chair all day. Are you freaking kidding me? Now, these guys were like early 20s. Old enough to know better. Oh, I'm sorry... What's that you say? Common sense & tact doesn't come with age? Go figure.

I guess it would be fun for them. They can get up & out of it whenever they want. If they can't reach the food in the refrigerator or the dishes in the cabinet & they have to use a reacher that is not only always getting misplaced (yes, all 4 of them at once, at times) bc some adults can't tell some children that those are not toys or better yet, when grown adults use them to reach trash under beds that Pee Wee gets into bc someone can't take the 15 minutes it takes to make a holder for the trash cans in the house that would raise them not only out of Pee Wee's reach, but put it in better reach for me.

Or how about the friends & family's houses you can't get into bc you used to walk, but now need a chair & even when you can get into the door you better pray that you don't have to go to the bathroom bc it's up a flight of stairs, so you not only start worrying about it the day before, but also, have to restrict your fluids so you don't have to pee, which

A) causes a lot of commotion & trouble just trying to get to the toilet,

B) you must drag the portable commode in your van (don't forget the TP), so if you got to go, you can go in there,

C) you have to leave the party early to either call it a day & go home before you have to pee, or

D) leave the party find the nearest public toilet, then decide if you want to go through the hassel of getting back in to the party!

When, in reality, all you simply want to do is spend time with your love ones & take some damn pictures. Oh, but wait, what's that you say? You didn't even get invited to that party bc someone assumed that you couldn't find someway in or some way around those steps to get access to the party or the bathroom, so they just took upon themselves to rudely exclude you rather than invite you anyway & let you decide what you can & can't do & if the hassle is worth it.

Yes, sir! It is so fun being in this chair. Bc why wouldn't it be? Then you just wouldn't have to use the two good healthy legs that God gave you. You could zoom around all day long have races with your other wheelchair buddies bc, you know, that's what I do with my time. When I'm not sitting in some field trying to watch my nephews play soccer, and go it move, but... wait, call your friend over (you know the strong one, who uses his God given legs) bc your stuck in the mud bc the ground is soft from it raining 3 days before - & normally if you were walking you wouldn't notice, but the longer you sit in one spot, the deeper the chair sinks bc of the weight.

So keep looking. Seriously, take a good long look at what fun this chair is. Go ahead. Look. And while you're at it, take your freedom for granted. Bc, well... you know... there's nothing better to do.

On Being Disabled: Just a Part of Me

I am so ecstatic! After spending almost 2 1/2 weeks in my manual chair, and being dependent on people more than I am accustomed to, I am FREE. Thank You, God! My power chair is up and running and it feels like a dream. The guy's name was Lou that showed up to fix it and he took 4 hours to do so. For whatever reason, it is always like that with this chair.

You just can't imagine what it's like unless you've been there. I try really hard not to complain, to take the hand that I've been dealt, to always see my glass as half full and not empty; to be nothing but positive. I have learned my world is a lot better and easier to handle, if I look on the bright side of things. Trust me, at times it is not easy to do and it is sometimes a struggle to do.

I haven't always been this way. As I've said before, this is what I have learned. When I had depression, it was difficult. Heck, if I saw anything besides darkness during the days of my depression, it was not only a good day, but a miracle. Seriously.

Although I've always had Cerebral Palsy (CP), I haven't always been in a chair. Sometimes (a lot actually), I truly miss walking like I used to, but by the same token, being in a power chair has given me a freedom I did not have before. For example, I am better able to carry things or take care of things, like my nieces and nephews. And eventually, although not yet, it will enable me to be a better mom. Also, cooking is easier and I can take the dog on a walk by myself. Simple things like that. And though I have always done things on my own, having a power chair takes my independence to another level entirely.

It bothers me when disabled people always use their disability as an excuse, constantly have pity parties, or complain. SUCK IT UP AND DEAL. Thea always says, "Life is tough, get a helmet." Gotta love her. I also have another friend, Bobby, who always said, "I have CP, CP doesn't have me." You see, some people let their disability define them. It becomes who they are. Me? I am - me. My disability is not who I am. It is one part of who I am. I am who God made me to be. He didn't make one part of me - He. Made. ALL. Of. Me.

Thoughts of You

Dear Mandy,

Here it is after one in the morning and I can't sleep. I find my thoughts drifting to you and am easily overwhelmed lately.

Since you left us, some days are better than others. Your memorial will be on May 23, nine days after my fourth wedding anniversary to Jake. Needless to say, I can't seem to wrap my brain around the fact that you are not here.

I'll be the first to admit, I have not grieved yet, but it is easy to procrastinate given no opportunity for closure.

I am exhausted. It's been raining here for nearly two weeks straight and I miss you giving me weather reports and writing mini novels on my Facebook wall.

It just occurred to me, that the reason I got up out of bed, into my power chair to blog now, is so that I could blog my thoughts and calm my mind for a bit.

Everything is numb. Well, sort of. This rain is causing a lot of pain, with little relief. Able bodied people can never understand what disabled people go through. And you know, I hate pulling the disability card, but I can not change what is true. The truth is the truth.

As I was grieving for another friend years ago, someone once told me something that I like to think is true for you - even if you could come back you wouldn't want to.

I am comforted by the fact that you are running in Heaven now, free from a body that limited you in so many ways, but could never cripple your spirit.

I love you.